Our other option at this point was to try to something called ACTH therapy, steroid injections given twice a day. This method is known to be very effective, but somehow I couldn't get a peace about it. Technically, it waits ....there on the back burner, ready to be used, but I truly pray Luke never needs it.
The plan now is to wean Luke off of one of his anti-seizure meds (Topamax) over the next two weeks. We will then take him to St. Louis Children's (not sure on a date...somewhere around the 7th of December) and he will admitted for about a week to start the diet. The diet change at this stage is thankfully just a change in formula. Luke does eat some table food, but he hasn't really taken to it much. So, it shouldn't be a huge change for him to just drink a different kind of formula for a while.
Your unending support, ceaseless prayers, words of encouragement...it is all so very much appreciated!! God is with us!