I'm exageratiing just a bit. But, ya know, Luke....well, things haven't been exactly normal for him.
So, honestly sitting here in my living room just 36 hours ago, I was doing my little "self-talk" pep talk for our trip to St. Louis. Saying basically, in so many words "Well, it won't be a normal EEG. I mean he's only been on the diet 4 months. The studies show the EEG usually doesn't normallize until after 6 months. Plus, he had a severe brain bleed....they already told you his EEG may NEVER be normal...ever, even if the seizures do go away. But it surely has to at least be improved. I mean he is learning new things and these huge clusters of seizures have gone away..." Anyway...on and on I went, just trying to prepare myself for...well, I don't really even know, but certainly not what we ended up hearing today!!!
Luke's been seizure free for 40 days now. Last time he had an EEG though, the docs in St. Louis were explaining to us that at times, Luke was seizing, but there was no outward demonstration of that. They had him hooked up to the machine and a video camera on him at the same time. So when the EEG showed seizure activity, they would look to see what Luke was doing right at that moment....and, well...nothing much...just laying there. This left me feeling very apprehensive, wondering if he was actually having seizures these past 40 days and we just weren't seeing the evidence.
THANK GOD, that's not the case!! I will write another post explaining some more of the details, but for tonight (and mainly cause I'm physically and emotinally exhausted after such an exhilirating day) suffice it to say, there is NO SEIZURE ACTIVITY going on....no potential seizure activity going on. It is ....normal.... and perfect and ...."phenomenal". Luke's had a dozen or more EEGs in his short life (how sad that I've lost count!) and this is the first time it has been normal.
All the way home from St. Louis (ok, minus the 20 minute power nap) I kept thinking about the verse in Ephesians that says that God is able to do more....abundantly more. The New Living Translation says,
"He is able to accomplish infinitely more than we would ever dare to ask for or hope."
Wow. Isn't that the truth!? And to think I would have settled for just an "improved" EEG. God had more in mind than I even dared to hope for!